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Tag: ChronicIllnessLife

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Medical Mayhem: Schrodinger’s Zebra

  • Posted on April 16, 2026April 16, 2026
  • by compendiary

When is a diagnosis not a diagnosis? When there is a mass medical backlash against the diagnosing of a syndrome or disease. Rare disease and undiagnosed patients often face an unfortunate pattern of events that is created not only by…

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Medical Mahem: Neuro-Ophthalmology Edition

  • Posted on March 22, 2026April 16, 2026
  • by compendiary

I recently vented in a rant that I had had the worst doctor-encounter since 2014, and I need to walk that back a bit. With a bit of space I realize that while it was at least top 10, it…

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  • Life-List

An Early Fall Life-List

  • Posted on August 16, 2022August 16, 2022
  • by compendiary

A List of goals, opportunities, and other odds and ends for the end of August through September. Point of View: compiled by a single female with a chronic illness. Some days, I would be able to any one or two…

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Recent Posts

  • Fixing The System: Accurate and Accessible Info About Doctors
  • Medical Mayhem: Schrodinger’s Zebra
  • Medical Mahem: Neuro-Ophthalmology Edition
  • Summer of Shakespeare: Twelfth Night
  • An Early Fall Life-List

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